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The True Story of One Man and a Rogue Chromosome. Between 1 in 500 and 1 in 1 000 men are born with an ‘extra’ X chromosome. The symptoms associated with this vary widely. Although many men remain entirely unaware of their additional X chromosome, and few boys who have it go on to develop Klinefelter’s syndrome, Stephen was one of those who did. The symptoms associated with this vary widely, but can include small testicles, resulting in sterility; the enlargement of the breasts; low energy levels and self-esteem; communication and learning difficulties; developmental delays; and decreased libido. Although many men remain entirely unaware of their additional X chromosome, and few boys who have it go on to develop Klinefelter’s syndrome, Stephen was one of those who did. As a young boy, Stephen always felt different from his friends – he was smaller, less self-assured and often sickly. He struggled with classroom learning and school sports. Only as a shy, embarrassed ‘sixteen-year-old with the body of a boy of ten’ was Stephen diagnosed with Klinefelter’s syndrome, a medical disorder resulting from his cells having one X chromosome more than is normal for males. With appropriate treatment, Stephen’s body began to develop into that of a man, and he felt able to embark on a ‘normal’ life, one that included girlfriends, marriage and a career. But his struggles were far from over, as the syndrome had left its indelible mark on this man’s psyche, affecting his life in ways he could never have imagined. Only after many hard-learnt lessons and a number of traumatic and life-changing events did Stephen reach a point of spiritual strength from which he could begin to tell his story. Living with My X is the astonishingly frank and deeply personal account of a man living in the shadow of a genetic condition that is less rare than one thinks.
- Sales Rank: #2292663 in Books
- Published on: 2010-06-01
- Original language: English
- Dimensions: 9.00" h x .67" w x 6.00" l,
- Binding: Paperback
- 294 pages
About the Author
Stephen Malherbe has worked in the printing and exhibition industries for most of his working life. In his forties he went on to study shiatsu and other alternative therapies. His interests are reading non-fiction stories and cycling four times a week to stay fit. He lives in Cape Town.
Most helpful customer reviews
5 of 5 people found the following review helpful.
oersonally revealing
By L Portera
The author gives a lot of himself in this book. It must have, at times, been quite difficult to reach inside and try to understand himself. We have a Klinefelter's son, so I know firsthand some of the social difficulties, personality disorders, and indecisiveness described by the author. It was enlightening and, for those of you who do not understand KS, this book could be a good, helpful read.
2 of 2 people found the following review helpful.
Poignant and moving real life.
By Christine Burke
I found this book poignant and moving. It explores the life of one mans journey with a debilitating illness that is unrecognized by most.
It's an easy read with an interesting story
0 of 0 people found the following review helpful.
Nevertheless I enjoyed reading the book
By Richard DesR.
To really appreciate this book you have to be in the author's shoes, you have to have been there. I've been there! I'm almost finish reading the book. I had to replace my computer during the time I had purchased the book. That is why the long delay. Nevertheless I enjoyed reading the book.
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